Sunday special

Haven't posted anything lately, because it's been pretty boring here! Boring's good compared to the hubbub of ICU and apnea spells though. We've been pretty lucky, we had my cousin, Crystal come and stay with Oakley last Monday, and her sister, Melissa, who babysat him on Thursday. It's been nice to have a few hours away from the hospital together. Last night, I went to Megan's going away to college BBQ on the South side of Seattle, and it was great to see so many familiar faces! Thanks for inviting me Wood's kids!

Oakley's goals for the week have been to gain weight, keep steady blood sugars, and not to surprise us.

So far, he's been ok at gaining, but not great. This morning, he was 5.61 kg (which is 12 lbs 5.8 ounces).



Some-bunny's a happy camper



Grandma Mona got me these sweet kicks



He's been pretty steady with his blood sugars, today has had more changes, but the last 2 days have been almost completely uneventful, with no insulin drip changes at all! He's been eating ok, sleeping ok, and we gave him his Mylecon (gas drops, I actually have no idea how to spell them) back, because he'd been crankier than usual, and he picked right up. His CBC (complete blood count) this morning showed that he had 1500 neutrophils, his platelets and hematacrit were ok (doesn't need a transfusion or GCSF/Neupagen) and that he's doing all he can to get on the track for his transplant. He's outgrown most of his socks, so I got to go shopping at Ross the other night and got some more sweet ones...he's in 12-18 month sized socks, but still has a couple of newborn and 0-3 month sized clothes that fit!



I have had several doctor appointments the last couple of weeks to watch my blood clots (I don't know if I've mentioned any of my own health issues that are going on, I'll look back and add a post if not) and my coagulation levels, and have been going through the ringer trying to figure out shuttles and buses to avoid paying out the ears for parking. Thursday, I ended up walking a couple of miles after being frustrated at getting off at the wrong stop. It's been great weather here though, I think it's only rained twice, so I enjoyed the sunshine while I could! I'm dreading the weather change that is inevitable up here. Someone told me that it gets dark at 4 o'clock in the afternoon in the winter time...I am going to have to figure out some way to keep sane and not get deprived of Vitamin D.

We are expecting Trevor's mom and her boyfriend to be coming up this weekend, so it will be nice to have some more time to ourselves to get to explore the city, and find some places that will be good for when Oakley's outpatient and we get to take him out, but have to limit his exposure to people and germs.

I found some pictures that I had taken of the little guy two weeks ago, and thought I'd share them. I've been going through tons of pics for a slideshow that I'm putting together for the thing going on at TGI Fridays coming up in October!