Well, he finally did it! Oakley officially engrafted on Friday, 11/23/2012. He actually got neutrophils the day after my last blog post, which was day 19 after transplant. His numbers went like this:
Day 19: ANC 39
Day 20; ANC 29
Day 21; ANC 231 WBC 2,100
Day 22; ANC 120
Day 23; ANC 857
Day 24; ANC 1,078
All we needed for official engraftment was two days in a row over an ANC of 500; so we didn't just barely scrape by, this kid has done it!
We were on the verge of having to artificially cause Oakley's body to prioritize making neutrophils, with GCSF, or Neupagen, but we didn't have to!
Since he now has an immune system, we are off the antibiotics! We are so close to being outpatient, I can taste it! The steps we need to complete now, are to fatten Oakley up, so that he is able to wear his CGM (Continuous Glucose Monitor) and his insulin pump. We also need to wean him down to taking his meds orally, instead of IV. We also need him to get his oxygen needs figured out. He has needed some extra help for the last few days, primarily while he sleeps. He's been breathing faster than he normally does, and they think he might have a virus of some kind. He has also had some blood in both his stool and his urine, but they aren't too worried about it for right now, because the most common culprits post-transplant aren't huge problems.
We have had a lot to be thankful for the last couple of days. Oakley's gaining weight pretty steadily. He had a big jump last night, he weighed 6.999 kg (15 lbs 6.8 oz) this morning, but yesterday came in at 6.742 kg (14 lb 13.8 oz), so I'm assuming they'll be giving him a diuretic to slough off any water weight. He's still not eating, so all of his calories are via his TPN; and the docs want to keep it that way until his breathing steadies, to make sure we avoid allowing him to aspirate any food.
We got a couple of fall pictures for Thanksgiving, and since I put the tree up, a couple of pictures of Oakley with his first Christmas tree.
Love you all!
Samanatha, Trevor, and Oakley
I am SO happy! Won't it be cool when he gets to be an outpatient, and you can actually take him outside? Lots of adventures ahead! Yea! PTL!!!
ReplyDeleteI love and appreciate you, Sam and Trevor, for all you've had to go through, and all that you are!
Love and Blessings,
Grandma D.